1 /5 Liana: I’m a 22 year old medical child and I’ve always disappointed with how I’m treated. I have Fibromyalgia, sjogrens, arthritis, asthma as my main issue. I usually live my life on a 5-8 pain scale. Whats disappointing is when I’m in the ER coming in from a referral from Urgent Care for a CT scan for possible appendicitis, you would think I would be near the top like I was told I would be. I was crying barely able to walk properly, pure body aches all around my body. I couldn’t stand straight with the pain in my abdomen. I couldn’t even breathe with out it hurting. With a running fever.
I told the nurse who checks you in all this information. She saw me in pain and crying. I told them I was negative at urgent and the referral she refused to see cause I’m supposed to give it to the doctor. They make me to blood, urine, swab test. I waited in the lobby for over 2 hours. I watched as patients who were taken after me get a room. I watched as elderly people with a possible hurt foot, a teenage who was laughing with her mom who “suddenly was hurting” when the nurses called her to a room for a possible uti get taken before me.
I may be young but I’m just as prone and feel pain 10x more than a normal human. So when I was finally called for a “room” as my mom advocated for me. I had to walk, hunched crying in pain using my mom and the walls for support. As the young interns learning walk slow and watch me suffer. Saying there’s no more wheelchairs. As I walk to my “room” which was a bed in a hallway. Every elderly person had one with them for just in case needs. When I was on the bed I couldn’t even move myself without assistance anymore cause I was declining badly. As I eventually met a doctor an hour later on that bed. He explained how everything was clear when they knew that previously and he didn’t see why I was being like this. I had to explain again why something was very wrong and should him the referral. Then I eventually got my ct with contrast.
While being transferred an intern asked how long I waited and said it wasn’t bad for someone like me. Tells me they’ve heard worse. I had to be carried onto that scanning machine and carried off crying
I was eventually diagnosed with gastroenteritis. Then this same doctor said wow I guess this affects you differently with your fibromyalgia since you seem so susceptible to that much pain. Like I didn’t know and had to fight to even get the ct scan done. No one should be treated like this. My own mother even told me just take an ambulance next time for something like this cause she would rather have to pay the price then have a possible chance I don’t get seen or treated right because of this. I’m beyond disappointed.
